Nov 12

Homeschooling & neuro-behavioral special needs: what type of homeschooling works best?

If you’re reading this you’re either curious about homeschooling because you think it will help your child, actively homeschooling and looking for tips, or searching in desperation because you’re sick and tired of whatever rigmarole you are going through with your child’s school.

I have been in all 3 situations. And like I said in my last post about homeschooling a child with ADHD or other special needs, including neuro-behavioral disorders, cognitive delays, developmental delays, social skills problems, learning disabilities, or just plain old out-of-the-box thinking, I am pretty new to the whole homeschool thing. I’ve been homeschooling my 10-year old son exactly 1 year and 3 months with a 6 month sabbatical (we sent him to a private special needs school) thrown in the middle. I don’t have all the answers, but I do know that pulling our son, diagnosed with fetal alcohol spectrum disorder (FASD), which includes elements ADHD, ODD, SPD, PDD, cognitive delay, and PBD out of school was one of the best treatment decisions we’ve made for him so far. Continue reading

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Nov 12

Homeschooling your child with neuro-behavioral special needs: myths and realities

Compared to many people, I haven’t been homeschooling very long. J, my 10-year old with ADHD, learning disabilities, audio processing difficulties, developmental delays, poor short term memory, and sensory processing issues, all under the umbrella of fetal alcohol spectrum disorder, or FASD, is only just starting his 2nd full year of homeschooling along with his brother, 13, who is neurotypical and a typical early teenager. But deciding to homeschool was no easy task, and I’ve read a lot and thought a lot about why this is the best choice for our family. Continue reading

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Sep 12

Why we quit school…again: homeschooling my special needs child (how we got here in the first place)

My son, Little J, is 10 years old. If he was in school technically he’d be in the 4th grade. I say “technically” because he’s nowhere near that level, educationally. If I had to guess – and at this point it’s a guess since all our current testing data says what he CAN’T do, versus what he CAN – I’d say he’s around beginning 2nd  grade level for literacy, and beginning 1st grade for math.

J has FASD, or Fetal Alcohol Spectrum Disorder. FASD is largely characterized by behavior. Because of J’s processing speed,  poor working memory, developmental delays, and cognitive difficulties he can appear oppositional, immature, and forgetful. He has a number of strategies he’s developed to buy himself time and not reveal that he’s having trouble. These include calling names, saying “no!” destroying his work, becoming frustrated, and downright refusing. These things “read” as J purposefully being difficult, but really, they’re just him managing his frustration. Most of the time if you can wait a beat and not react to these behaviors he’ll comply with what you’ve asked. But you have to wait a beat.

He is a hard kid to have in class. Continue reading

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Sep 12

Part 2: Homeschool, the Special Needs School, now back to Homeschool.

Here’s part 1: Why we quit school…again: homeschooling my special needs child (how we got here in the first place)

image by flickr user sheeronSo we homeschooled. It was rough. The learning curve – MY learning curve – was steep. I was spending 24/7 with a child who had major behavioral difficulties and who really needed to be watched like a hawk with almost no respite and a heart full of worry and fear and anger and exhaustion…and even though I tried really hard (read about that here), I burnt out. We both burnt out. You can read all about that here.

The great homeschool experiment was last year: 2011. In January of this year, after being rejected from the special needs private school closest to our house, we enrolled J in a different special needs private school. An hour from our house.  And I mentioned private, right? Which means TUITION. Continue reading

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Feb 06

Hefty Topic Are Brain Food For Kids

Just try talking about an issue of substance in front of your kids. If they’re like mine, they dig right in with their questions and opinions. That’s what makes dinner table conversation so lively.

No surprise, a recent study notes that family discussions about current issues boost kids’ reasoning and mathematical skills. Unlike more casual chats, conversations about social and political concerns help kids make sense of numbers. That’s because parents tend to give examples, use real life mathematics and ask children to reason for themselves.

In our house, family blather tends to include topical issues but the study reports very few of these conversations are taking place between kids and parents around the world. In fact, they happen less than once a month for 58 percent of children in the 41 countries studied.

The study’s author suggests talking to kids about oil spill volume and asking them questions about clean-up methods, but there’s no need for a despair-laden quiz session. Open-ended discussions can easily touch on the math, science, history and ethics of any concern society struggles to resolve. The big issues don’t have easy answers but they do make great topics, even if we talk about them around the table while still chewing.

 

Laura Grace Weldon is the author of Free Range Learning: How Homeschooling Changes Everything. She lives on a small farm with her family where they raise bees, cows, chickens, and the occasional ruckus. Laura writes about learning, sustainability, and peace for print and online publications. Connect with her at www.lauragraceweldon.com

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Jan 18

School ADD Isn’t Homeschool ADD

Today we’re pleased to offer you an an excerpt from our soon-to-be-released anthology,  Easy to Love but Hard to Raise: Real Parents, Challenging Kids, True Stories. The personal experiences shared in our book cover a whole range of viewpoints. This is one family’s story.

 

Image from W1LL13's Flickr photostream

I hesitated at the heavy glass doors of my son’s school. I’d cheerfully walked in these doors many times. I volunteered here, served on the PTA board, joked with the principal and teachers, even helped start an annual all-school tradition called Art Day. But now I fought the urge to grab him from his first grade classroom, never to return.

Continue reading

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Jan 10

Reading Readiness Is Linked to Movement

kids need to move, movement linked to pre-reading,

CC BY-SA 3.0 via Flickr Joe Shlabotnik

Today’s children sit more than ever. Babies spend hours confined in car seats and carriers rather than crawling, toddling, or being carried. As they get older their days are often heavily scheduled between educational activities and organized events. Children have 25 percent less time for free play than they did a generation ago, and that’s before factoring in distractions like TV or video games.

Left to their own devices, children move. They hold hands and whirl in a circle till they fall down laughing. They beg to take part in interesting tasks with adults. They want to face challenges and try again after making mistakes. They snuggle. They climb, dig and run. Stifling these full body needs actually impairs their ability to learn.

Continue reading

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Jul 14

Free at last?

School ended for much of America a couple of weeks ago, but for our homeschooling family the end of school means the beginning of camp. Camp, blessed camp. Camp=kids out of the house=peace and quiet=time for me to cram as much WORK as possible into my day as I can.

So I’m not as free as I’d want to be, but I like the work that I do so freedom=finally space and time to think and concentrate, something very difficult to accomplish when my ETL child and his brother are banging around the house.

After months of homeschooling under our belts, Little J has undergone a remarkable change. When we started he literally had no idea what to do with himself in the hours at home. He’d bounce from one activity to the next, one space to the next, one mood to the next….you get the picture. He constantly got into things he wasn’t supposed to (see Saga of the Sheds, over at A Mom’s View of ADHD). He’d fight and argue with me about everything (see pretty much my entire blog over at A Square Peg, A Round Hole). And he’d never, ever finish what he started. Even though I wasn’t trying to replicate the school day in our homeschool, he seemed to be replicating his experience of school: the constant change in activities, place, focus.

But then, over time, the metamorphosis began.

He went from bouncing from thing to thing to spending hours doing one single thing: banging nails, practicing casting with his fishing pole, watching marathons of Mythbusters on TV when I’d let him. He built things – strange things that only made sense when he explained them, but building with purpose, nonetheless. We started having conversations. He would read easy readers with me and suggest we do the activities in the back of the book. He would pull out drawing books and draw.

Now, I’m not suggesting things were perfect – not at all. He is still himself, which is fairly ornery, very rigid, mostly grumpy, and defaulting to NO in almost all situations. After a month or two of struggling to cover basic skills in our homeschool I eventually gave up, devolving into a much more relaxed ‘deschooling’ phase where the only thing I was insistent about was reading. (Which was pretty effective, by the way. I haven’t tested him in a while but I know he’s improved at least a grade level in reading since we started, and probably more, since he’s reading more fluently and easily every single day).

In a couple of months, once all our summer camp and traveling are over we’re going to try to be a little more structured about “schoolwork.” He and I have already talked about how he’ll have to start doing a little math, and we’ll have to read some harder books come fall. His brother will be home, so there’ll be the challenge of juggling both kids, although I’m hoping that his brother’s work ethic, ability, and enthusiasm will bleed over to Little J when it comes to academics. But in homeschooling we were able to give him time to be free, and once he got used to the freedom a lot of the things we assumed about him: that he couldn’t concentrate, that he couldn’t finish anything, that he couldn’t sit still – we found weren’t completely true.

I am only wishing that summer weren’t going by so quickly, that I had more time to be free and find my place. I, too, like long stretches of uninterrupted time to accomplish my work. I wonder if space and time isn’t what a lot of our Easy to Love kids need. I’m not suggesting everyone pull their kids out of school – I realize this is an impossibility for the majority of people who are reading this. Our family is very lucky that I work at home and have family nearby and have a fair amount of flexibility. But I’m wondering what would happen if kids who were constantly in trouble at school and at home – those kids who don’t deal with frustration well, who have poor social skills, who don’t transition well, or who have sensory issues – what if they had the freedom in space and time that my child has had these past 6 months? Prevailing wisdom says that kids with ADHD or other behavioral issues need a lot of structure in their lives. But maybe what that means is that when they’re in very structured, boundary-driven environments, the rules need to be made extremely clear to them so they can succeed. Little J certainly needs clear-cut rules and boundaries in all situations, for if you give him the proverbial inch he’ll take the full mile, and then some. But in Little J’s case I think the highly structured environment of school was keeping him from growing. If other people were constantly telling him what to do and how to behave, then he never had to figure it out for himself.

In school they like to say things to the kids that imply they’re choosing their behavior:  they give the rule and the consequence and so by not following the rule they’re choosing the consequence. But if the rule isn’t one the child can follow he’s not making a choice, is he? Over and over again Little J was told to sit in his seat and be quiet. He could not do this. Couldn’t. So he wasn’t choosing the consequence. He just had to accept it. And the reward for “choosing” to sit in his seat and be quiet was that he’d be able to do what the class was doing: worksheets, most of the time covering skills he hadn’t learned. So a situation where he was failing all around. But still, the language was of choice, but there was no choice at all. No freedom.

I guess my point is that I think we all need more freedom in our lives. I know that’s easy to say and hard to accomplish, and again, I know I’m in a very privileged situation. For many ETL parents it’s scary to think about being around their kids more, rather than less. I get this and I’m not afraid to say it. There have been plenty of times I’ve wanted to get away from my ETL child – heck, the first sentence of this blog entry is about how summer camp is giving me a much needed break. Freedom isn’t just for the kids, it’s for the parents as well – respite from constant childcare, stress, and worry is freedom for parents of ETL kids.

Perhaps take this as a challenge, an assignment. What is freedom for you? What is freedom for your ETL child? What would happen if you both had more freedom?

 

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Apr 04

Homeschooling, or why school didn’t work for us, part 2

Here’s part 1 of “Why school didn’t work for us”

The vomiting, weight loss, and freaking/tweaking behavior can’t go on. Even if it means the child can sit at his desk and do his work. So parents make the only choice they can make at that point: they pull him from school.

~~~~~~~~~~~~~~~~~~~

No doubt you’ve guessed it by now: this is our story. It’s  why we decided to homeschool. Our backs were against the wall and for our child’s sanity and our own we didn’t feel that we had any other choice. Yes, we could have stayed and worked with the wonderful, calm, experienced, organized teacher and eventually worked something out. We know she knew there were problems. But the wheels turn so slowly in our school system…and we couldn’t wait for that. Our problem was immediate. We weren’t willing to wait 2 years for him to be more than 2 years behind. And for what? An hour a day with the resource room teacher? Everyone knowing he couldn’t do what the other kids were doing? Kids picking on him (because oh yeah, did I happen to mention he was the class ‘loser’?). Constant anger, frustration, and disappointment?

Nope, we had no other choice.

~~~~~~~~~~~~~~~~~~~

I could probably write a BOOK about what’s happened to our family in the few short years we’ve been involved with public school as parents (and more as me as teacher-librarian). The system mostly fails kids like mine (and maybe yours) and it seems as though for every person who feels happy with how their child’s school deals with his or her disabilities there are 20 that are miserable.  I know that parents of ‘average’ children often feel the same way; now that we’ve pulled Little J from school his older brother, a very successful middle-school student, will follow him next year. Now that we’ve tried it we’ve seen how well it can work (for them; for me it’s often very difficult I have to admit)

I have great hopes for how homeschooling – or some other (future) form of alternative schooling – will solve many of our son’s problems with learning. I’m happy to report that in the 2 months he’s been home his reading has increased by a grade level and just today we played a game that involved counting money!  Some days have been incredibly hard: because he either couldn’t do the work because he didn’t have the skills, or was anxious about the work, or couldn’t attend long enough to accomplish the work (and probably a combination of all 3), he developed many behaviors to avoid doing the work. This has been a constant battle, but one which I know we’ll overcome.

I have a blog about our homeschooling journey that is filled with a lot of posts about muddling through. I need to get better about updating it(especially if I ever hope to write the aforementioned book), and I’ve written about it on A Mom’s View of ADHD as well, specifically in this post: “When Winter Break Lasts Forever: Why We’ve Decided to HomeSchool our ADHD child” and “Would you, could you, homeschool your ADHD child?” which I wrote back when we were trying to figure it all out. Please have a read if you’re interested or if our story rings true. And share your own story – either here or on Facebook.  I know this is a constant struggle for anyone raising a child with special needs.

 

Adrienne Ehlert Bashista lives in central North Carolina with her husband and 2 boys, ages 8 and 11. She is a contributor and co-editor to Easy to Love but Hard to Raise: Real Parents, Challenging Kids, True Stories. To read all of Adrienne’s posts on this blog, please click here.

 

 

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Apr 04

Homeschooling, or Why School Didn’t Work for Us

Here’s the story: child, 8 years old, diagnosed ADHD and developmentally delayed/socially delayed, with up-to-date Occupational Therapy assessments stating small motor, trunk strength, and coordination deficits, as well as past diagnoses of SPD, ODD (although those behaviors are related to probably frustration at his limitations instead of him being just plain old oppositional), a recent IQ test stating that he has serious deficits in working memory and math, and a school history that includes In School Suspensions, a 504 plan, constant notes home to mom and dad about behavior, ways of  dealing with behavior issues that included sitting him the corner, letting him play games and search randomly on the computer all day, having him “earn” rewards by staying on task in 15-minute increments, the inability to complete homework, the inability to demonstrate to mom, dad, and a neuropsychologist that he’s at the grade level that his teachers’ report him at, and day after day after day of screaming and tantruming and weeping after school in first couple months of each school year.

Whew! Take a breath, y’all. There’s more.

And when the parents request a meeting with the principal they are denied. And when they request an I.E.P. so their child can get some written-down accommodations that the school has to put into effect (because the 504 plan, although written down, seemingly has no real meaning to some of the teachers assigned to our child) it is denied.

Denied.

Because once the I.E.P. is requested the daily notes about behavior stop coming home. And although yes, there is a medication change, our child’s behavioral change is ascribed to the behavior plan that lets him earn rewards by staying on task in 15 minute increments.  And the teacher claims that our child – the child who had behavior notes sent home for 2 straight months, who cannot read at grade level when his mother (a teacher-librarian at another school) administers a reading test, cannot count money or tell time, and who did not do a single page of homework after November when his mother gave up fighting with him for 2 hours nightly – the teacher claims that this child had no behavior problems, is on grade level for reading and math (math that includes telling time and counting money), and has turned in every single homework assignment given to him.

Denied because they believe the teacher. Even though the notes and the assessments and the incomplete homework is produced. An ‘observation’ by another teacher is said to show no problems: (parents are promised copies of this but it’s never been sent.)

Teacher (and school) trumps parents. Teacher (and school) trumps experts. Teacher (and school) trumps doctors and OT.  Teacher (and school) trumps all.

So the parents, who are sad and scared and freaked out and angry – so angry – do the only thing they can do: pray for a decent teacher next year. And they get one! Thank goodness! All that wheel squeaking amounted to something. But then… wonderful, calm, experienced, organized teacher is having difficulty. After about 4 weeks the honeymoon is over with the child. She puts him by himself in corner. She tries to make him behave using the 15-minute increment behavior plan. She starts allowing him to play war games on computer all day because it keeps him quiet. She notices he has problems, but there is only one of her and so many of them…

And so the social worker, who, bless his heart, is really only trying to help (we must still try to believe this: the goodheartedness of most people) comes up with a plan where the child will report to a nearly empty room every morning and “entertain” himself until his medication kicks in. Because that is what they’ve determined to be the problem: the child’s medication. Without it he is unable to stay seated and won’t follow directions. With it he can be persuaded to stay in the corner playing war games. Or maybe do a math worksheet or 2 in a very small group. After a day of this plan the child refuses to go to school. Refuses.  Runs away when it’s time to leave. And the day after that he makes himself vomit so he won’t have to go and sit in that room and face the wall.

So parents once again panic and double the meds (with doctor’s permission).  They start getting up at 5 a.m. to give him the highest possible dose of medication possible…which is repeated at school a second time. This results in 5 pounds on an already underweight boy lost in 5 weeks, 4 vomiting sessions, and a tweaked-out, freaked out zombie of a child.

Part 2: Enough already?

(image by flickr user: http://www.flickr.com/photos/cogdog/)

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