Jun 29

Worried Sick

Even though I didn’t know what to call it, I have struggled with anxiety my whole life. In my mother’s generation, she admitted to having “bad nerves.” My boys were called “sensitive” by the time they were 18 months old.  Biologically, sensitivity just means that the brain’s fight-or-flight reaction (an automatic response to perceived danger) is heightened above average.

In the cave man days, sensitivity saved us when we were being attacked by sabre-tooth tigers. The next time we saw a tiger, we knew to stay away or kill it. But in this epoch, that automatic fear response isn’t as useful in the living room, school, or the grocery store. According to Keys to Parenting Your Anxious Child by Dr. Katharina Manassis, approximately ten percent of the population struggles with excessive sensitivity which can lead to a life of fear and avoidance of situations that other people find only mildly stressful.

Because my boys and I caught the virus for worry warts, I made it my plan for this summer to understand our anxiety and how it affects self-esteem so I can better manage it and, in turn, teach my seven-year old boys to manage theirs.

Dr. Manassis’ book recommends desensitization as one approach to lessening anxiety and it comes in at least two flavors: Flooding and Systematic. My dad practiced Flooding when I was a kid. He pushed me off the dock and yelled, “Swim!” Dr. Manassis recommends gentle flooding for small children with mild fears. Systematic desensitization is gradual and can start with simply talking about spiders, then looking at photographs, eventually looking at real ones through Tupperware, and then letting one crawl on you. I still don’t let spiders crawl on me on purpose, so I guess the time line can be subjective and fear-specific.

She also suggests:

  • Giving small and frequent positive reinforcement for “brave” behavior, 
  • Labeling the anxiety/worry when it rears its red-faced, weepy head, and
  • Learning and teaching coping self-talk. At my house we use the phrases, “Is this a disaster like a flood or an earthquake?” and “What can I do to calm down and solve this problem?”

I’m making jokes but anxiety in older children may result in depression and even suicidal tendencies, so we should not make light of our children’s fears, but instead tune in and understand their extent clearly.

Dr. Manassis’ book is definitely worth the read because it’s full of other recommendations on relaxation, diet, exercise, sleep, and medication as well specific issues like perfectionism (who me?) and separation anxiety.

This summer I’ll also be reading parts of Overcoming School Anxiety: How to Help Your Child Deal with Separation, Tests, Homework, Bullies, Math Phobia, and Other Worries by Diane Peters Mayer and 501 Ways to Boost Your Child’s Self-Esteem by Robert Ramsey.

What approaches have helped lessen your children’s worry and anxiety?

Lorraine Wilde is a freelance journalist, environmental scientist, and mother. Her work has appeared in Entertainment News NW, Ithaca Child, and the parenting web site Neighborhood-Kids.com. She also blogs at My Wilde World.

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Feb 25

Hope for Me and My Babies

Big thanks to Kay Marner and Adrienne Bashista for organizing this blog and for editing and publishing the Easy to Love, Hard to Raise anthology. I’m honored to be a part of it.

I am Lorraine Wilde and I have been blogging about my writing journey at One Writer’s World from the Pacific Northwest since 2009. I often use my writing as a way to process my feelings about my children’s disorders.

I’ve known since my twins were 18-months old that they weren’t typical. The signs were there earlier, but denial has been a long-term friend of mine.

A fellow mom in Baby-and-Me class helped me realize my children struggle with Sensory Processing Disorder (also known as Sensory Integration Disorder). Sensory Processing Disorder is a neurological disorder causing difficulties with taking in, processing, and responding to sensory information about the environment and from within the body (visual, auditory, tactile, olfaction, gustatory, vestibular and proprioception).

Assessments during preschool led me to consider Asperger Syndrome, but it turns out getting a firm diagnosis was cumbersome and elusive. I’m a scientist, so I tend to approach everything that way. I read every book my public library had on Asperger’s. One book helped me discover that my boys suffer from a metabolic disorder called pyroluria. Pyroluria is a blood disorder where an unnecessary byproduct, kryptopyrrole, is formed during the manufacture of hemoglobin, a constituent of red blood cells. Kryptopyrroles floating around can result in a whole host of symptoms, many of which are shared with Asperger’s and other disorders.

I felt immediate guilt when I realized that my children had inherited this disorder from me. I was dismayed that I’d been living my whole life undiagnosed. I also have Sensory Processing issues and pyroluria, but I never knew what to call it. I knew I wasn’t typical and I’d made a very long list of my “character flaws” that needed work, but I never considered there was an actual explanation for it.

Because my twins are now only seven, they don’t yet understand their disorders, and every day I am thankful for that. The time will come soon enough, and I don’t look forward to the day I must explain it to them. I’m hoping that next week’s episode of the TV show Parenthood, where parents Adam and Kristina will be explaining to their 11-year-old that he has Asperger’s, will give me ideas on how I will broach the subject someday.

One of the hardest parts for me has been letting go of my hopes for a typical, boring life; accepting that my children probably won’t be the most popular kids in school; accepting that they might have to struggle for their whole lives with these disorders.

But discovering that I’ve been living with these disorders has also helped me realize that my kids will be okay, because I’m okay. I’ve had a productive career and while relationships are a continual struggle for me, I have many friends, all without the behavioral interventions, therapies, and accommodations from which my children are now benefiting. My road was bumpy, but I survived it with joy and hopefulness, and so will they.

I’ll be blogging again next week about my hesitation to start the latest therapy, the Wilbarger Brushing Technique, that will hopefully lessen my son’s tactile sensitivity, specifically an aversion to rain on his skin, which can be tough to live with in the not-so-sunny Pacific Northwest.

Lorraine Wilde is a freelance journalist and environmental scientist. She posts regularly on her blog and has published articles at the parenting website www.Neighborhood-Kids.com. Lorraine is writing her memoir, Egg Mama: An Egg Donor and Her Extraordinary Family.

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